I have always found writing extremely cathartic, but none more so than in my current situation of living with Pudendal Neuralgia. I began writing in ‘diaries’ or ‘journals’ at a young age and was also an avid reader. But when writing, I was always concerned that someone would read my private thoughts. To me this would be intensely embarrassing. What if the reader didn’t approve or like what I had written ??? Well it has only taken me over forty years to realise that writing is not necessarily about pleasing someone else, although years and years of post-grad studies certainly reinforced the opposite. What you wrote for the Lecturer/Tutor was all about appealing to the senses in order to gain good results.
It was through one of my online communication tools on Chronic Pain, a request had come from a journalist to hear from people in the community and gather information from the perspective of a patient. I was at a point in my new life of living with pain where my mind chatter was focused on little more than the pain, the future, and what I had lost from my past. In order for me to live in the present I needed to limit the incessant mind chatter, or would the term ‘clutter’ be more suitable, and release the negative thought patterns that I had developed. Quite often, in the early hours of the morning, I was able to facilitate this release through writing or typing my thoughts. The writing process had a dual benefit. Firstly, providing an avenue for a relief of the burdening thoughts I was having and secondly, providing a record of my journey. At first I struggled with the thought of sharing not only how I was feeling but more importantly that I would be judged ie. Don’t be weak, just get on with it etc. However, what I have come to learn through social media is that sharing of yourself and your pain is actually empowering. Sufferers of Chronic Pain should not be judged, blamed or made feel guilty and I want to part of the growing force in speaking up loudly and with strength for myself and other sufferers! I would also like to publicly thank the clever person who came up with Chronic Pain’s associated term of ‘Invisible Illness’, this term should almost be placed in Dictionaries, but more on that in future posts.
I invite you to follow my journey along this bumpy road, as I work through this life that has become mine. I would also invite you to share your challenges and successes too.
Health & Happiness