My Story – Part One
My Name is Narelle and I suffer from a condition called Pudendal Neuralgia for which there is no current cure. I am a 47-year-old female and live by myself at this point in time I will try to express how Pudendal Neuralgia affects my life on an ongoing basis.. I have two children from a previous marriage who are now aged 27 yrs and 23 yrs old. They both lead very independent, and productive lives, which makes me an intensely proud mother.
I was diagnosed with Pudendal Neuralgia in 2008 after multiple hospital and specialist visits. Following my diagnosis I have undergone numerous operations and procedures in an attempt to cure the illness. This included Decompression surgery, nerve blocks; using local anaesthetic and botox. I also underwent a trial of a Neuro-Stimulator where two wire leads were located close to the offending nerve in order to alter the pain responses without success. I have been through various medication combinations but unfortunately a cure at this point has been unsuccessful.
Professionally up to this point in time, I was an experienced educator and had enjoyed studying, obtaining numerous university qualifications, obtaining several scholarships throughout this time. As a result of my time spent studying and focusing all of my energy into my profession, I had reached the level of an educator of Gifted Students. I found it increasingly difficult after 2008 to maintain the level of hours required and my absence in the classroom was disruptive to the school and the students for which I felt extreme guilt. I left the school following the necessity for Pudendal Nerve Decompression surgery at the end of 2009. I was off work for just over 4 months, with no income as my teaching position was a Casual position.
Pudendal Nerve Entrapment. This nerve is located in the lower pelvic region but also impacts the bladder, bowel and reproductive systems. I found my workplace to be very unsupportive as on the outside, I looked perfectly healthy. I was in hospital several times over the next year and was given nerve blocks which involved the use of botox. This nerve block would only last 6 -8 weeks and the botox alone cost $500 a vial and could not be claimed against medical insurance. But wow, I really appreciated those weeks without pain. It was then decided that surgery could provide a possible permanent solution by releasing the trapped nerve. By this time I was required to attend a pain clinic in preparation for the upcoming surgery and see a pain clinic psychologist to assist in all that I was experiencing. In the meantime, I was placed on Endone and Valium, neuro blockers and anti-depressants, while I awaited surgery. This type of surgery is still in what should be termed an experimental stage in our country and has only been completed since 2008 by the Professor that I am under. I would be the 26 patient that he would perform this operation on. The surgery had a 64% success rate and with my positive mindset I was determined to raise that statistic. The surgery took place on December 2009. That was just over 12 months ago.…. (To be continued)